What is the outlook for people with Rett syndrome?

Many people with Rett syndrome live well into their middle age and with the help of relatives, carers and a multidisciplinary care team can lead a fulfilling and happy life. The condition worsens over time so people will require more attention and care as they get older; they may lose the ability to move independently and their communication skills may deteriorate so they will require more help and support.

Rett Syndrome

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